So this is Christmas

Just interrupting the Raylene story, now that we’re finally getting out of the kitchen, for some personal notes.

I’ve just bought a lot of champagne and white wine for Christmas, which is largely, damn near entirely, a close family occasion. Usually I like to host as many people as I can, people who aren’t doing family Christmases, but the family outvoted me on that one. So there it is.

Christ on a bike

Christ on a bike

As for me, I spent three days sleeping round the clock, hardly getting out of bed, after finding that I didn’t have cancer. Then I got flu and something horrible and gastric (you don’t wanna know about it).

Finally I got up, weak as a kitten.

Usually I run down to the bottom of the nearby waterfall and back, but all I’ve been able to manage is a walk down my own property and then back to the house. Exhausted.

So that, I think, is my body telling me enough is enough. It’s been a year of death and separation and loss, and various systems want me to take it easy for a while. So I’ll be sensible for a change.

I’m basically stoical, cheerful and optimistic, and I intend to stay that way. But I’m not feeling any sort of Christmas spirit – no jollity, and I have to remember that I love people – not all the people, obviously. Still, I’m going to get back to normal. 

On the day, since my father isn’t able to do it, I’m going to be a gurning fool, possibly in a white cottonwool beard, shouting ho ho ho, pressing champagne on people, and announcing and doling out the presents one by one with a lot of shouting. A sort of meld of my father and Brian Blessed. 

On not having cancer

I’ve given away the end of the story in the title, there. All my cancer tests came back, and I failed them all. Every one. Negative every time, in every sample in every kind of tissue and body fluid, and in every scan, by every means, of my firm proud slightly puffy body. 

Which leaves a few doctors wondering why. It means I’m still “interesting”, medically, when I’d rather be boring.

But don’t worry, this blog isn’t going to tell you any more about the brief, bloody rebellion of my innards. My body put it down and re-established order. Any more trouble-making and there’ll be shootings. 

(That’s probably how Kurt Cobain spent his last minute: auto-surgery. “Awww, my stomach hurts. And I got a headache. I’ll git that fucka!” BLAMM!)

I’ve been tested intensively enough that I know that whatever it was, my body had the reserves to deal with it thoroughly, leaving no trace of the original problem or signs of future problems. Freak event. Damn freaks. 

Which means no surgeries, no chemo, no loss of my hair, my beautiful hair, and no worries about whether they got the lot, and all that sort of nightmare. Just life, which goes on.

The funny thing is that it feels a bit flat at the moment. I should be out champagning and dancing, but what I’ve mostly done since getting the news is sleep. I’ll probably feel more joyous in a day or two, when I’ve caught up and relaxed again.

What remains when all else is gone

I’ve been spending time with my father. He was a powerful man, once. Now he is not.

He has no money in his pocket, because he loses it and gets it stolen when he has cash, and he can’t manage a bank account. The hospital provides the expensive things he needs, my sister and her husband look after the accounts on behalf of all of us, and I provide things he shouldn’t have. There’s care for him in that, but he has no power.

He’s not living in his home because he’s in the dementia unit of a hospital. He doesn’t have my mother, the love of his life, with him so he is not a husband and a lover. He cannot protect her or lead her because she is dead. 

I asked him what he wants for Christmas, and he said, “A fast car.” And then he admitted that he couldn’t drive it if he had one. I remember that sometimes, when he was a younger man and I was barely a boy, he’d buy family cars that were a little racy. Muscle cars. I never knew till now how important the cars were to him. He married early, and had his first children straight away (I was a late afterthought), so he never got to drive the kind of cars he wanted. I wish I’d known when the knowledge could have done him and me some good. So now he can’t have a road racer, and he always wanted one. Damn. Damn. 

He’s lost his intellect. He’s lost the power and authority of his body and his voice. All he has, all that remains of the man he was, is his decency and his niceness. He tries to be kind; it’s his instinct and his habit. 

Because of that, the nurses and orderlies and doctors and administrators like him. They make sure any decision falls on my father’s side of the ledger. So he is looked after, and people are decent and kind to him. Decency and niceness are survival characteristics. 

That’s all. It’s a lesson. In the end, you cannot pretend to be someone you are not, because you lose the capacity to pretend. You live better if you are, by habit and nature, decent and kind.  

I don’t believe in any gods and I don’t believe in karma, but that observation about human behaviour (in ordinary, non-emergency situations): I believe that.

Kua hinga te kauri-nui o te wao nui a Tane.

Old man walking

I’m with my father. He’s very old and frail. It’s still startling to see how much power he’s lost, each first time I see him. I took him out of the hospital to a fashionable restaurant in an expensive sea-side township.

shortsThere were lots of girls in cut-off shorts, with only a few threads from the torn denim covering the lower half of their asses. Yay, I thought, though I was busy.

Also, there were the boys in board shorts chasing them, and richer middle-aged men chasing both. I don’t think anyone there had ever seen an actual old person before. 

I felt, noticing the shocked glances of the girls, that by bringing Dad there I’d introduced a memento mori into the scene, like the dancing skeleton among the beautiful young women in a Medieval painting.

I’m afraid I thought their shock was funny, just like those grinning skeletons did. People used to socialise outside of their own age group more, with courting couples and their aunts’ babies all at the same table. And old people. Now they don’t mingle so much: people the media would call attractive only mingle with other people the media would call attractive. It’s not their fault that they’ve been segregated from the very young and the very old, but it is silly. They’re impoverished, in human terms, because of it.  

I hadn’t thought about that aspect of, oh, life, when I chose the restaurant. I’d just wanted to take my Dad somewhere nice, near where he used to live with my mother. He’s been one year and a fortnight without her, since she died. So I thought the shock of the old was interesting, but I didn’t worry about it. And my father didn’t notice.

I could see him remembering my mother, his wife, and his eyes filled with tears. So I hugged him, told him I loved him, and bought him a glass of champagne.

I’ll tell you a bit more tomorrow. 

Going to California with an aching in my heart

I fly out to see my father today. He has dementia now, more or less all the time. He used to be good in the mornings, but he’s got no good reason to keep a clear grasp of a world that doesn’t have his wife in it. 

But my sister told me that in one of his clearer moods he said he’s going to die soon. Of course, that doesn’t mean that he will, but you never know. So I’ve made a booking and I’m going to see him.

He’ll know who I am, I’m pretty sure, even with his marbles gone, and I expect he’ll enjoy the visit. There are some stories he likes to tell, and I only have to drop a couple of key words and he’ll launch onto them. Having forgotten how many times he’s told them before. 

And that will be fine. He’ll tell a story, he’ll fall asleep, and he’ll wake up with a shock and find that I’m there. So he’ll enjoy my being there, while I’m there.

But mostly it’s for me, because I know that the next day he’ll have forgotten. But I need to see him before he dies, if he’s going to. No real reason. I’ve said good byes, and I suspect I won’t grieve much when he does die, because he’s already mostly gone. And he wants to be dead. He’s not in pain or unhappy, but he thinks he’s done and should rest. He’s done everything he needs to do, in his own estimation and mine. 

But we are what we are, and we need to mark these things by meeting. 

One thing, though. I still don’t know whether or not I have cancer. But I’m not going to talk about it with Dad, because he doesn’t need to worry about that. He wants to die knowing that his children are all all right. 

So I won’t talk about cancer, partly because I don’t know whether I’ve got it. And he won’t talk about dementia, because he definitely doesn’t know that he’s got that. 

Ahh, man, fuck cancer: I mean, seriously, fuck off, cancer

Thing is, I been pissing blood. It’s stopped now, but my urine looked like pinot noir. No pain, so there was nothing to distract me from the sight of it, and I can report to you that it looks really, really weird.

I got two doctors who think there’s a reasonable chance it’s a presenting symptom for cancer. So I’ve contributed a whole lot of blood and urine for some lab to take a look at in the next week. I’m getting ultrasounds on Monday.

So life’s on hold until late next week. Because that’s when I should know. I actually don’t think it is cancer, because there are other possible explanations and the odds are against it. But I know that I wouldn’t actually know, and my assessment of the odds is close to worthless. And even having to worry and wait is pretty shitty.

I’ve been a bit weary the last couple of days, because this has been a year of this sort of shit. My mother died, my father’s losing his marbles and is now in a dementia ward, the woman I loved done left me, and … Oh, that’ll do for now; I got enough for a blues.

Bad news

I’ve had some bad news. I’m not ready to write about it, and I’m mainly in a mood for – I don’t know. At different times in my life I’d have got drunk, or hidden from all my friends till I’d dealt with it, or switched myself off but gone on doing what I usually do, but not really being there, or playing bad music incredibly loudly, or shouting poetry, in private of course. Sorry, you get this lot: 

      Alas! I have nor hope nor health,
         Nor peace within nor calm around,
      Nor that content surpassing wealth
      The sage in meditation found,
         And walked with inward glory crowned—
      Nor fame, nor power, nor love, nor leisure.
[…]
      Yet now despair itself is mild,
         Even as the winds and waters are;
      I could lie down like a tired child,
      And weep away the life of care
         Which I have borne and yet must bear,
      Till death like sleep might steal on me,
         And I might feel in the warm air
      My cheek grow cold, and hear the sea
Breathe o’er my dying brain its last monotony.
Riwha Titokowaru

Riwha Titokowaru

.

But also, less weary, some defiance from Titokowaru:  

“E kore a hau e mate kāore a hau e mate,
ka mate ano te mate.”
“I shall not die; I shall not die.
When death itself is dead I shall be alive.”

Contact form, and a portrait of the writer

Lovely girl, just behind me. Heart of stone.

Lovely girl, just behind me. Heart of stone.

This blog is getting readers. I’m very pleased. Jerusalemmortimer.com has been going for quite a while now, and it’s nice to know all those words aren’t just hitting a wall somewhere and sliding down to the floor.

It does mean I have to be a little more careful about fixing my first drafts before I post them. I used to put stuff up unedited and un-proofread, and fix it a day or so later, because it didn’t matter: I knew no-one was reading it anyway. Now I’ve got readers I’m more careful about making sure the posts make sense. 

As for you readers, I’d love to hear from you now you’re out there. I’ll answer questions, and probably even grant the odd blog topic request. 

There’s a Contact Us button, for writing to me. (There’s no “us”; this vast blogging and research empire; it’s just me.) Ask me anything! 

Still in the library

"Of the organising of books there is no end, and too much shelving is a weariness unto the flesh." As Einstein said, on the internet. Or possibly Oscar Wilde.

“Of the organising of books there is no end, and too much shelving is a weariness unto the flesh.” As Einstein said, on the internet. Or possibly Oscar Wilde.

I’ve been working in the library. All the live-long day. I have a lot of things to blog, but no time at the moment.

I am building up to a post on why hitting children is a bad idea. Which links to theories about sexual development and interest in bdsm. But maybe it’ll be all the better for leaving it brewing in the back of my mind for a while before I write it.

Here’s another pic of the library, to give you an idea just how much work I have to do.